He brought us all laughter and demonstrated dedication to a cause that we at Scleroderma Atlantic share. They can visit our website sclerodermaatlantic.ca where they will find access to support and community. If you are reading this and know someone living with scleroderma, please share our organization’s information with them. Scleroderma Atlantic is a not-for-profit organization led by volunteers who for the most part either have scleroderma or have cared or are caring for someone living with scleroderma. Testing is very specific and treatments can be both hard to access and inadequate for the multitude of symptoms. He leaves behind wife Kelly Rizzo and three adult. Diagnosis can be very difficult and can take years to confirm. 9 in his hotel room at the Ritz-Carlton in Orlando following a performance outside of Jacksonville, Florida. Right now, there are over 400 people in Atlantic Canada living with scleroderma. Little did I know that just a few years later, my sister would be diagnosed with the disease." Saget recalled to People Magazine, "I said yes and hosted the event, which starred Ellen DeGeneres, Rosie O'Donnell and others. 9 would have been his older sisters 75th birthday, but the former school teacher from Philadelphia died in 1994 following her scleroderma diagnosis. 9, Bob Saget paid tribute to one of the most important people in his life: his late sister, Gay. He volunteered actively and eventually became a board member of the Scleroderma Research Foundation, raising millions of dollars and hosting his signature comedy show Hot Cuisine, Cool Comedy for the cause. Hours before news of his death broke on Jan. Bob was a dedicated advocate for the scleroderma cause for more than 25 years. Her illness and death was a terrible shock to the family and Bob would say his parents suffered from PTSD as a result of the experience of caring for Gay through her illness. Bob’s sister Gay, a school teacher, became very sick and ultimately died from scleroderma at 47.